During the visit to Leeds Children's Hospital, her mum, Vicky Robayna spoke of her ongoing pride in her daughter, in ...

She told BBC Radio York: "Right at the very end, she was still taking photos four days before she died – at the Royal Variety ...

She died in late November and her family are now raising money to set up the first charity dedicated to research into desmoplastic small round cell tumour (DSRCT) – the rare and aggressive ...